“One may have a blazing hearth in one’s soul and yet no one ever come to sit by it. Passersby see only a wisp of smoke from the chimney and continue on the way.” – Vincent Van Gogh
This quote really touched me today. When you live with a chronic invisible illness, people just simply don’t know what to do about you so many choose to walk past – the wisp isn’t enough for them and they continue on their way.
I refuse to stop talking about the fact that I have a disease called Ankylosing Spondylitis. If that makes you uncomfortable well then, you are free to walk past, but if you do, you missed your chance to meet a new friend who has learned empathy in a deep way.
When you live with AS or a chronic illness, you know what it’s like to be shut out for being different and you know what it’s like to have people do whatever they can to not discuss the topic of your health. We are not our disease but for heaven sake – acknowledge this huge part of what we deal with on a daily basis by simply asking us how we’re doing. If you can find the way to do this for your friends or family who are dealing with illness – we promise to thank you and not bore you with the details.
I’m simply me. My hearth is blazing – come sit by me and don’t think for a second that I’m not worth the time :)
Day 171 was created in mixed media