We Did It – We Circled The Globe!

“Never doubt that a small group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has.” – Margaret Mead.

There has been some discussion in the AS community as of late as to what “awareness” means.

If you pull out the dictionary, or google the word – you get a simple definition that falls far short in my opinion on the full scope the word has come to encompass.  Being aware is not only something to strive for as we navigate our world but something that many are now arguing is a concept that has become trite, over used, and over ribboned.

Perhaps it has.

My feeling and answer to that is, “so what?”

Do we not work towards sharing knowledge just because some are already educated? That sure isn’t my approach to life and I hope, my fellow friends who have Ankylosing Spondylitis, that we don’t give up our quest to have people know about this disease just because some don’t want to see one more ribbon or be asked to participate in one more walk or fundraiser.

That will always be the case. We must simply find new and creative ways to talk about what is important to us. It is important to me so I will continue advocating for raising awareness and speaking about a need for a cure. It isn’t an easy road or frankly a popular one in many circles but again… so what? I don’t care if you judge me – I care to be a voice for speaking up about a disease that isn’t included in discussions about arthritis. It is a part of who I am and what I want to do in this life and people who choose to tune out will have first heard me roar!

Many of you know one of my mottos in life is “KEEP GOING!” Don’t complain about the situation of awareness if you aren’t going to look to help find ways to contribute to things getting better. Don’t criticize others efforts if you haven’t done something yourself to change the status quo. And please don’t sit by and simply watch when you can help. I don’t care how you go about helping raise awareness but please find a way that works for you personally, and contribute.

I congratulate everyone who stepped and was a part of  Walk Your A.S. Off. You did something to make a change both for our community and for yourself. Bravo – I salute you all! And you have my deepest and most heartfelt thanks.

We did it and proved the naysayers wrong. We proved that we can actively work to move our bodies despite our pain. We proved what a small group of thoughtful, committed people can do!

Just shy of sixty four million steps taken and recorded! Imagine what we can do if we pull together and do more!



3 comments for “We Did It – We Circled The Globe!

  1. May 9, 2012 at 8:06 am

    Together, we are a strong voice. Thanks again for the wonderful event that put the power in our hands

    • May 9, 2012 at 2:56 pm

      I’m so glad you were a part of it Vic! Thanks for being such a great team captain and for keeping my parents in line! lol

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